This site is intended for a U.S. audience.
The contents of this site are not intended for the purpose of disease diagnosis or as a substitute for information that is provided to you by your physician. You should always discuss your medical condition and any questions you have with your doctor.
Short bowel syndrome (SBS) is a rare, chronic condition in which people are unable to absorb enough nutrients and fluids from what they eat and drink. Usually, patients at risk of SBS have undergone surgery to remove a large portion of their small or large intestine because of a primary disease or an injury.
The intestines absorb nutrients from food and drink. Usually, people who have SBS have undergone a surgery to remove a large portion of the intestine, limiting the amount of nutrient and fluids the remaining intestines are able to absorb. When this happens, people with SBS might have to receive nutrients and fluids from intravenous feeding. Total parenteral nutrition (TPN) refers to a type of intravenous feeding of nutrition.
Malabsorption associated with SBS puts patients at risk for diarrhea, dehydration, electrolyte disturbances, and malnutrition.
A diagnosis is made based on a detailed patient history, thorough clinical evaluation, and a variety of specialized tests including lab tests and x-ray studies.
If you or a loved one has been diagnosed with SBS, you’re not alone. Connecting with others can give you a way to learn from others who have been where you are. Reach out and get involved!
Shire provides funding to some of the below organizations in support of efforts that include, but are not limited to: research, education, meetings/events and support.
The Crohn's & Colitis Foundation of America (CCFA) is a non-profit, volunteer-driven organization dedicated to finding the cures for Crohn's disease and ulcerative colitis, and to improving the quality of life of patients affected by these diseases.
The Oley Foundation serves patients on home parenteral (IV) and enteral (tube-fed) nutrition. Their website contains a variety of medical and practical information such as trouble shooting guides, travel tips, networking and educational opportunities, as well as printable tools.
A rare disease umbrella organization that provides advocacy, research, education and patient services in the US. See how they help and find out how you can get involved.
The IFFGD is dedicated to informing, assisting and supporting people affected by gastrointestinal disorders.
UOAA promotes quality of life for people with ostomies and continent diversions through information, support, advocacy and collaboration. UOAA's website provides practical information and opportunities for peer support through affiliated groups.
The Short Bowel Syndrome Foundation is a community made up of SBS patients, family members and healthcare providers. It continually strives to provide new and up-to-date information on the topic of SBS through education and support services.
Seattle always made me feel comfortable to contact her, and she gets me the product support information I need.
– Misa, OnePath Patient supported by Seattle